We bring you the latest news from the healthcare about the health care in the United Kingdom.

dinsdag 10 juli 2018

The Lancet: [Comment] Myotonic dystrophy type 1: reasons to be OPTIMISTIC

[Comment] Myotonic dystrophy type 1: reasons to be OPTIMISTIC
Myotonic dystrophy type 1, the most common adult-onset form of muscular dystrophy, is a multisystem disease with progressively worsening symptoms. Fatigue constitutes the most common non-muscular symptom in patients with this disease,1 and can exact a heavy toll on their quality of life. In The Lancet Neurology, Kees Okkersen and other investigators from the OPTIMISTIC consortium2 report the effects of cognitive behavioural therapy on the health status of severely fatigued patients with myotonic dystrophy type 1.
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[In Context] A new life after stroke
In 1965, the American actor Patricia Neal had three intracranial aneurysms causing a near-fatal stroke. The left side of her brain was damaged, which caused paralysis on her right-side and loss of speech. In the early stages of her recovery, she spoke in jargon, replacing words with invented ones: a cigarette was an "oblogon", a drink was a "soap driver". Her husband, author Roald Dahl, made a crucial and pioneering decision about her rehabilitation: she would have six hours of speech therapy a day (replicating a school day), with the help of family and friends, rather than the recommended few hours per week.
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[In Context] Wilder Graves Penfield
Neurosurgeon whose scientific contributions span epilepsy to cortical representation. A great sportsman and a pioneer of functional neurosurgery, he was born in Spokane, WA, USA, on Jan 26, 1891, and died in Montreal, Canada, on April 5, 1976, aged 85 years.
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[Articles] Oral fingolimod for chronic inflammatory demyelinating polyradiculoneuropathy (FORCIDP Trial): a double-blind, multicentre, randomised controlled trial
Fingolimod 0·5 mg once-daily was not better than placebo for the treatment of CIDP. Future trial designs should take account of the possibility that if IVIg is stopped abruptly, some patients might relapse soon afterwards whereas others might remain in remission.
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[In Context] The evolution of universally accessible building design
"As far as I'm concerned it's neither public nor convenient", declares a male wheelchair user denied stair-free access to a lavatory in a public awareness poster issued in 1979–82 by The Spastics Society (now renamed Scope). Currently, the poster is displayed at the Victoria and Albert Museum (London, UK), as part of Without Walls: Disability and Innovation in Building Design, an exhibition charting the evolution of architectural practice from designing for disabled people without consulting them, to designing with their input.
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